It breaks our hearts to let everyone know that George died on Friday 25th January. It happened very quickly. George looked so beautiful.

Over the last week George had became very unwell. He was spending most of his time asleep. We knew that our time with him was coming to an end. We had decided that we did not want George to go into a Hospice. We wanted him at home with us. He died at about 1am Friday morning. His Grandparents, Aunts and Uncles were told immediately. They all came round to see George laying peacefully on our bed. We all stayed with George until about 8.30am. We then had to say “Goodbye” to him before he was taken by the undertakers. He took his cuddly dog Judy with him.

The house is so empty without him. His toys, games, clothes and books are still here, but he is not. We are finding is so difficult. We have nothing to do. George always kept us so busy. We miss him so much and are not sure how we will manage without him. Our lives were always about George. What do we do now?

George’s Grandparents are helping us to arrange the funeral. These things have to be arranged as soon as possible. We are finding it so hard to deal with all the information. We want to do the best we can for George. A date has not been set yet. We should hopefully know in the next couple of days. We will let everyone know as soon as we find out.

We could not decide what to do about flowers for George’s funeral. We have now decided that people can either donate money to George’s appeal or give flowers. Any money, that is left in George’s appeal, will go towards funding treatment for the other children who have neuroblastoma, who are trying to raise funds through the 2 Simple Trust.

Once again, we would like to thank everyone that helped us take George to New York. We could never have done that without all of your support. You all helped George try to fight this terrible disease.

We would like to say a special “thank you” to The 2 Simple Trust. We would not have been able to do all that we have done for George without them. We would also like to thank all our family. They have done so much for us. They have always been there to support us and help us in our hour of need. We are so lucky to have such a loving family.

We were so lucky to have George as our son. He truly was one in a million. He had such a massive personality. He loved to make people laugh. He was also the bravest boy in the whole world. We loved him so much.

Martin and Helena xx